Just Weak

I do not have much strength at all. This has been going on for about 6 weeks now. This weekend it got really bad, so bad I could not stand up long enough to do anything, let alone walk across the room. I felt so lazy just lying on the couch but I could not do anything about it. When I was strong enough to walk I would wear myself out by the time I reached the otehr side of the room. It really was not too much fun.

I wanted to go get a new toothbrush. Couldn't do it because I couldn't walk around the store. I wanted to go to church. Couldn't do it because I couldn't walk to my car.

Oh, well. These are just things that are part of having MS. It's the wonderful unpredictibility of the disease that keeps us on our toes (figuritively, obviously not literally).

I really hope I am feeling stronger this weekend. I'd like to go shopping!!!

On the plus side, my insurance has kicked in!! It has been over 2 years since I had health insurance so now I can go see some doctors!

I made an appointments with two doctors from the University of Pennsylvania Hospital. One is to discuss the chronic bleeding and pain and will be on December 29. The other is for a neurologist who specializes in MS!! How exciting! That one will be on March 20.

Hopefully, he will put me on one of the A-B-C drugs... but NOT Avonex so just one of the B-C drugs. Avonex is the one that had me so sick and put me in a wheelchair in college. Betaseron was a good one. That is just a subcutaneous injection and is done every other day. Copaxone is also sub-cue but is done everyday. Maybe that wouldn't be so bad. The Avonex is intermuscular and really hurts! But that is just done once a week. Other than the extreme weekness that came from that one, the only downfall with the intermuscular injection was that I could not give it to myself. After a couple weeks, I was able to give myself the Betaseron. Hopefully we can do that one again.

So, there is something to look forward to! I am going to be able to see a doctor in a few months!

Jamie suggested I call to get an emergency appointment but I don't want that because I know they will just put me on some form of steroids (prednisone... the oral form or salumedral...the form given through an IV) and I can't do that to myself because there are too many side effects. I just need to wait it out. That is what I'd rather do, even if it means missing out on life at the moment.